As an advocacy organization, the Hemophilia Federation of America (HFA) knows that the strongest case for change comes from people’s real experiences. Since 2022, HFA has partnered with Cortico to hear directly from bleeding disorder community members about their experiences and needs. In 2025, they brought a bigger question: not just what is life with a bleeding disorder like today, but what could it look like in 2035?

In collaboration with the Institute for the Future (IFTF), HFA hosted a series of virtual listening sessions from October through December 2025, inviting community members from across the country to imagine the future of bleeding disorders care. Participants reflected on topics ranging from standard of care and early diagnosis to quality of life, equity, and the future role of HFA itself.

Results: A community vision for 2035

What emerged was a layered picture of both hopes and fears. Community members imagined a future with better diagnostics, more equitable access to care, and treatments that could transform daily life. They also named real concerns: about insurance barriers, provider education gaps, and the risk of being left behind by a system that doesn’t fully understand their needs.

Those insights now live in a private conversation portal — accessible to HFA and their community — grounded in the voices of the people HFA advocates for, and designed to protect the trust of the people who shared. It’s a resource built to inform HFA’s work for years to come.